News & Analysis as of

Data Privacy › Genetic Testing › Health Insurance Portability and Accountability Act (HIPAA)

Orrick, Herrington & Sutcliffe LLP

Navigating Privacy Gaps and New Legal Requirements for Companies Processing Genetic Data

Orrick, Herrington & Sutcliffe LLP on

Interest in genetic data is on the rise, driven by the growth of direct-to-consumer (DTC) genetic testing and its value for AI in drug development and personalized medicine. Historically, gaps in privacy laws have sometimes...more

Holland & Knight LLP

Podcast - Who Owns Your DNA? Lessons Learned from 23andMe

Holland & Knight LLP on

In the first episode of a "Florida Capital Conversations" new healthcare privacy series, Tallahassee healthcare attorneys Shannon Hartsfield and Eddie Williams discuss the evolving landscape of genetic data privacy, focusing...more

Rivkin Radler LLP

23andMe Bankruptcy Raises Legal Concerns Over Genetic Data Privacy

Rivkin Radler LLP on

23andMe’s recent Chapter 11 bankruptcy filing has sparked significant concerns over the privacy and security of genetic data belonging to its 15 million customers. Founded in 2006, 23andMe built its business around...more

Alston & Bird

To Delete or Not to Delete: Can 23andMe Really Sell Genetic Data Via Bankruptcy?

Alston & Bird on

On March 23, 2025, 23andMe Holding Co. (“23andMe”) filed for bankruptcy in the Eastern District of Missouri, potentially setting in motion the sale of genetic data collected from more than 15 million people.  This has led to...more

Jackson Lewis P.C.

Privacy Versus Cyber – What is the Bigger Risk?

Jackson Lewis P.C. on

“Cybersecurity” has emerged as one of top risks facing organizations. Considering the steady stream of massive data breaches affecting millions (sometimes billions), the debilitating effects of ransomware on an organization’s...more

McCarter & English, LLP

Are You Ready? How CCPA-Regulated Businesses Can Plan for Compliance with California’s Forthcoming Cybersecurity Regulations

McCarter & English, LLP on

The California Privacy Protection Agency (CPPA) released initial draft regulations for cybersecurity audits (which have since been amended) and risk assessments late this summer. The agency’s board of directors addressed the...more

Epstein Becker & Green

Beyond HIPAA: FTC’s Data Protection Authority Results in Settlement with Genetic Testing Company

Epstein Becker & Green on

A recent enforcement action by the Federal Trade Commission (“FTC”) against 1Health.io—which sells “DNA Health Test Kits” to consumers for health and ancestry insights—serves as a reminder that the FTC is increasingly...more

Jackson Lewis P.C.

You Have Heard Of The BIPA, But What About The GIPA?

Jackson Lewis P.C. on

Enacted in 2008, the Illinois Biometric Information Privacy Act, 740 ILCS 14 et seq. (the “BIPA”), went largely unnoticed until a few years ago when a handful of cases sparked a flood of class action litigation over the...more

Sheppard Mullin Richter & Hampton LLP

California Governor Pulls the Plug on Genetic Information Privacy Act

Sheppard Mullin Richter & Hampton LLP on

Governor Gavin Newsom of California vetoed a bill that would have created new limitations on data sharing for direct-to-consumer genetic testing companies. The Genetic Information Privacy Act (GIPA) asked testing companies...more

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