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Genetic Testing

Foley Hoag LLP - Security, Privacy and the...

23andMe Bankruptcy Update: How the Proceedings Highlight Best Practices for Handling and Transferring Genetic Data and Personal...

After Foley Hoag’s prior updates regarding the chapter 11 bankruptcy cases of 23andMe Holding Co and its affiliated debtors (collectively, “23andMe”), the United States Bankruptcy Court for the Eastern District of Missouri...more

Amundsen Davis LLC

Navigating Genetic Privacy Compliance: Key Steps for Employers

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Most Illinois businesses well are aware of Illinois Biometric Information Privacy Act and the hundreds of lawsuits and multimillion dollar settlements it triggered. But there’s another Illinois privacy law quietly making...more

Stikeman Elliott LLP

23andMe : une faille de sécurité qui rappelle l’importance d’une gouvernance proactive en matière de protection des renseignements...

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En 2023, une cyberattaque d’envergure a exposé les données génétiques personnelles de millions d’utilisateurs de 23andMe, une société américaine offrant des services d’analyse du code génétique aux particuliers, poussant les...more

Cozen O'Connor

The State AG Report – 06.12.2025

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Here are curated AG and federal regulatory news stories highlighting key areas in which state and federal regulators’ decisions are having an impact across the US: • Connecticut Law Aims to Weed Out Illegal Sales of...more

Cozen O'Connor

Bipartisan AGs Sue to Stop 23andMe’s Sale of Consumers’ Genetic Data

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A bipartisan coalition of 28 AGs have filed a lawsuit against 23andMe Holding Co. and 23andMe, Inc. (collectively “23andMe”) to protect human genetic data collected by the company from being sold without consumers’ consent as...more

Dorsey & Whitney LLP

23andMe Sparks Lawmaker Race to Protect Genetic Data in Bankruptcy

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When direct-to-consumer genetic testing company 23andMe Holding Co. and its affiliates (together, “23andMe”) filed for chapter 11 bankruptcy on March 24, 2025, they possessed data from over 15 million customers. Specifically,...more

ArentFox Schiff

23andMe and the Role of Privacy in Bankruptcy Law

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There is nothing more inherently unique and personal to an individual than his or her DNA. Unlike many other types of personal information, a person’s DNA is immutable. It can be the key to unlocking extremely sensitive...more

Rivkin Radler LLP

Genetic Testing Marketing Companies and Executives Settle Medicare Fraud Allegations for $6 Million

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The U.S. Attorney’s Office for the Eastern District of Pennsylvania announced on April 23 that Genexe, LLC (doing business as Genexe Health) and its parent company, Immerge, Inc., along with two of their executive...more

Holland & Knight LLP

Podcast - Who Owns Your DNA? Lessons Learned from 23andMe

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In the first episode of a "Florida Capital Conversations" new healthcare privacy series, Tallahassee healthcare attorneys Shannon Hartsfield and Eddie Williams discuss the evolving landscape of genetic data privacy, focusing...more

Morrison & Foerster LLP

When Your Life Sciences Are on the Line: False Claims Act

Morrison Foerster partners Kate Driscoll and Nate Mendell, both former federal prosecutors and members of the firm’s Investigations + White Collar Defense Group, hosted the ninth episode of When Your Life Sciences Are on the...more

Seward & Kissel LLP

Not the Rite Stuff, Private Eyes, and Inquiring Minds

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Rite Aid bankruptcy update: report says pharmacy chain may be facing insolvency as businesses close | Fast Company - Having previously filed for bankruptcy in 2023, Rite Aid is now preparing to file a second bankruptcy...more

Poyner Spruill LLP

The 23andMe Bankruptcy and Implications on Your Ancestry Data

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On March 23, 2025, 23andMe, along with its affiliates, filed for voluntary Chapter 11 bankruptcy. The company’s decision to file for bankruptcy follows in the wake of a 2023 data breach affecting close to 7 million customer...more

Rivkin Radler LLP

23andMe Bankruptcy Raises Legal Concerns Over Genetic Data Privacy

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23andMe’s recent Chapter 11 bankruptcy filing has sparked significant concerns over the privacy and security of genetic data belonging to its 15 million customers. Founded in 2006, 23andMe built its business around...more

McCarter & English, LLP

Follow the Breadcrumbs: Where Does Consumer Data Go as 23andMe Goes Bankrupt?

23andMe, a pioneer in the DNA testing kit industry, announced that it has filed for Chapter 11 bankruptcy protection and recently asked to select an independent customer data representative regarding any sale of user data....more

Jackson Walker

Immediate Steps to Safeguard Your Genetic Data Amid 23andMe Bankruptcy Concerns

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Since its 2006 founding, 23andMe’s (the “Company”) service of collecting, analyzing, and reporting customers’ genetic information has raised privacy concerns among many. Worsening those concerns, the Company filed for...more

Alston & Bird

To Delete or Not to Delete: Can 23andMe Really Sell Genetic Data Via Bankruptcy?

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On March 23, 2025, 23andMe Holding Co. (“23andMe”) filed for bankruptcy in the Eastern District of Missouri, potentially setting in motion the sale of genetic data collected from more than 15 million people.  This has led to...more

Seward & Kissel LLP

Bad Idea Genes, Pension Plan (?), and Vertical Integration

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23andMe files for bankruptcy, Anne Wojcicki steps down as CEO | CNBC - Genetic testing company 23andMe filed for Chapter 11 bankruptcy protection in Missouri federal court. Anne Wojcicki, co-founder and CEO, has resigned...more

Robinson+Cole Data Privacy + Security Insider

Privacy Tip #437 – 23andMe Files for Bankruptcy—What to Do If It Has Your Genetic Information

Genetic testing company 23andMe has filed for Chapter 11 bankruptcy protection, and its CEO has resigned. It is seeking to sell “substantially all of its assets” through a reorganization plan that will have to be approved by...more

Foley Hoag LLP

23andMe’s Bankruptcy Doesn’t Mean Genetic Data Will Be Improperly Disclosed

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The chapter 11 bankruptcy cases of 23andMe Holding Co. and its affiliated debtors (collectively, “23andMe”), the company that provides direct-to-consumer genetic testing and ancestry services, has prompted a wave of panicked...more

Faegre Drinker Biddle & Reath LLP

The Latest on Pharmaceutical Company-Sponsored Diagnostic Testing Programs

Pharmaceutical company sponsorship of diagnostic testing remains an area with a gaping divide between the views of regulators and industry, with regulators focused on potential fraud and abuse concerns while industry...more

Morgan Lewis - Health Law Scan

HHS OIG Sets Out Limited Guardrails for Patient Assistance Arrangements

In honor of Rare Disease Day on February 28, 2025, Morgan Lewis is publishing a series of posts on As Prescribed and Health Law Scan throughout the month of February on issues impacting the rare disease community....more

Morrison & Foerster LLP

True Facts About False Claims: MoFo's FCA Newsletter - January 2025

Designed for busy in-house counsel and compliance professionals, this newsletter seeks to bring you up to speed on key federal and state False Claims Act (FCA) developments, with links to primary resources. Each quarter, we...more

Morrison & Foerster LLP

New HHS-OIG Guidance on Sponsored Genetic-Testing Programs

On December 17, 2024, the Department of Health & Human Services, Office of Inspector General (HHS-OIG) issued its second favorable advisory opinion involving an arrangement in which a drug manufacturer sponsors genetic...more

Arnall Golden Gregory LLP

OIG Approves Pharmaceutical Manufacturer’s Proposed Free Genetic Testing

The Department of Health and Human Services, Office of Inspector General (“OIG”) recently released a favorable advisory opinion, OIG Advisory Opinion No. 24-12 (the “Opinion”) to a pharmaceutical manufacturer (the...more

Troutman Pepper Locke

Trends in State and Federal Regulation of Consumer Genetic Testing

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Direct-to-consumer (“DTC”) genetic testing companies are faced with more scrutiny than ever over their privacy practices, security practices, and data use policies. In December 2023, 23andMe experienced a data breach...more

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